Superheroes

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Earlier I posted about heroes, and I’ll get back to that.  Right now I want to talk about superheroes, mainly DC based because Marvel has some weird stuff going on.  My halloween costume aside, we’ll leave marvel to the side.

Superheroes, as DC envisions them, usually are born with their powers and deal with it their whole lives.  (Batman the exception, he’s totally normal just super rich). Superman, Wonder Woman, the Flash, Martian Manhunter…all born with the powers.  Nothing wrong with that, of course, but it is something almost that we can’t understand.  That’s why there are so many storylines that try to show weakness.  (I can’t stand those.  No villain that is stronger than them, just their own angst and emotions or ego that is the enemy.  I’m sorry but that’s not why we read superhero comics!)

So that comes to my favorite, Hal Jordan.  “Joe,” you ask, “that’s not a superhero name!”  You are right.  Because Hal Jordan was a brave, upright, honorable man before he became the Green Lantern of sector 2814.

green_lantern__hal_jordan_new_52__by_robthesinger-d50woozHe was a test pilot, already putting his life on the line to test the newest planes.  In the classic GL, he was also upstanding, always ready to do the right thing, and just an all around good dude.  You want that kind of dude on your superhero team.  Getting the green ring that is focused by willpower added a whole new dimension to his skills and abilities.  However, unlike other superheroes, the ring is something that can leave Hal and he has the strength to go on without his power.  Hal is a human, he has doubts and insecurities, but also knows the right thing to do even though it is tough.  And (unless you read the modern comics, that made him uncharacteristically whiny and emotional) he does the right thing.  (Again, caveats – he’s still a comic book character and I’m SURE that over the 60 years or so he’s been around that they’ve written many bad things he’s done.  This is my blog.)

Let’s put this into context – Hal Jordan punched batman in the FACE.  Without using his ring’s power!

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(Fair disclosure, it was a sucker-punch.  But no one punches Batman without powers.  Except Hal Jordan.)

So, that brings me to the purpose of the post.  We humans admire superheroes, we watch the movies, read the comics, etc.  But we know in our hearts that we can’t be them, no matter how many capes we have.  That is why Green Lantern is the best- he’s a guy, that because of his character was given the power of a superhero, and then used it to become the greatest of all the lanterns.  And still was a regular dude and would be able to move on from that power.  He is closer to you and I than anyone else in the universe (unless some of you are super rich heirs to a fortune) and that makes him relatable.

Because I have off days.  Frankly, there are days when I grow discouraged with not being able to hold a fork, or speak up in meetings, or pick up my kids, or throw a basketball, or be understood when I talk.  This is real, this isn’t something glamorous or that I can fly off to a solitary fortress of some kind to recoup, I have to deal with it.  And in those off days, I pray, and worry, and hope.  And I pray some more.  And… sometimes silly reminders of comic book heroes help you get through the day.  So why not pick the one that is closest to real life?

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Remember that we all have down days.  We all “lose heart”.  We all get discouraged when our wheelchair doesn’t get picked up by companies (ok that’s just me.). But our human life is one of trying to do the right thing.  We rely on powers outside our own control or creation to get through those moments, but before we can rely on them, we have to take the step in the little things.  If we fall, we have to choose to get up.  If we fall short, we have to choose to try again.  If we can’t do it, we have to choose to ask for help.  Life is a series of choices, and while we can’t do it alone, neither can we wait around for someone else to magically do it for us.

It takes Hal Jordan’s own choices to make him the best Green Lantern.  Life takes our choices to make us the best we can be, too, no matter how down we get.

Let’s choose to get up, ask for and accept help, and keep moving forward.

There are no accidents

Let me tell you a story.  It’s a long one, but it’s got heroes and a villain and providence and ups and downs.  But it’s a good story, in my opinion.  (Maybe because it involves me?)

The villain, in this case, is ALS.  It swooped in, ruining my personal and career desires, family desires, long term desires.  Like most villains, it destroys things in it’s path.  It cannot create, it can only subvert and twist and destroy (JRR Tolkien’s explanation of evil for the win).  And the villain does not go away.  Much like Tolkien, the villain is present till the very end (and there are still villains even after the big villain is defeated).  Also like Tolkien, the villain isn’t in your face at every moment.  He’s a menacing presence, who’s emissaries create the threat with the knowledge of the incredible powerful force still to come.

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Sauron, by JRR Tolkien (Unfinished sketch)

The scene is set for the heroes to come in.  Continue reading “There are no accidents”

On Heroes

 

This is first in a series

“It’s hard to find heroes nowadays.” – paraphrasing my ALS clinical director.  She’s partially right… and partially wrong.

I’d argue that finding heroes in today’s public world is a lot harder.  Athletes are disgraceful, frankly.  Our parents used to look up to athletes, remember that?  And as such they had a public persona that was something that people could look up to.  Now they don’t care and don’t want to be role models.  Movie stars?  Well there has always been a seedy underbelly of Hollywood, but there were gems growing up.  Jimmy Stewart?  John Wayne?  Gary Cooper?  I’m sorry but Channing Tatum isn’t the same.  Politicians?  I’m gonna say mostly no.  Even religious leaders in the Catholic Church, people we should look up to?  There are a lot of examples of sinners…

I’d also argue that all the above is a crock of bull.  There ARE heroes out there, good people who’s public persona makes it less obvious.  Or flying under the radar because their persona is not larger than life.

Heroes aren’t “out there”.  They are right next to you.  There is a hero at my work that every day comes in and takes care of his people, standing up for them and deflecting for them and caring for them.  There is a hero that cares for her aging stepfather who is ill.  There is the hero that teaches school with migraines from light intensity.  There is the hero that holds the house together if their spouse is out of town.  There is the hero that straps on his tools of the profession every morning, taking calls on days off or at vacation, and comes home to his family every night.  There is the priest that is seemingly everywhere, tirelessly bringing joy, hope, and love to all the people around him.  There is the bishop walking anonymously among his sheep on the March for Life.  There is the mother caring for her son with cancer.  There is the young man himself with cancer, battling through some of the most painful and intense treatments.  These are the real heroes we should be looking for.  They are people like you and me, who try every day and get up when they fall.

So, as my first hero, I want to point out a hero super close to me, who will hate this post.  My wife Melanie.

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Mel stays at home with our 4 kids, and makes EVERYTHING work in our house.  (I fix things she tells me to.). Lunches?  Mel.  Dinner?  Mel.  Homework?  Mel.  Laundry?  Cleaning?  Everything?  Mel.  (I know, I’m lazy and this should show it.)  Mel also provides a sounding board for her sisters, is a good friend to lean on, a comedian at heart, and strong in her faith.  Not only that, but she takes the time to make sure our children learn the faith and grow up with manners.  And now she cares for me as I’m less able to do things.  Dressing changes, IV infusions, doctor visits, even buttoning my button when I can’t do it.  She started a job selling skin care products to make some money on the side for expenses as we deal with the illness (shameless plug for her stuff!)  She goes with me to every doctor visit.  She’ll come with me to Lourdes.  My partner in life is my first hero, my strong right arm.

Lets not say that this doesn’t stress her out – it stresses her immensely.  But she put on a brave face to all of it.  I draw strength from her strength as she deals with all this stuff.  Like I said before, the real heroes are right among us, and I see Mel’s heroism every day, from waking up to bed-down.  And when at the end of the evening, I see her quietly resting and recuperating from the day, I say a prayer of thanks for her.  And then I tell her I love her.

Like I said, she’s gonna hate this because it’s embarrassing,  ALS makes you more PDA though.  I have a condition, I’m allowed (and I don’t care what you think!). But I think that even though it’s embarrassing, it’s important to highlight the heroes that are right here right next to us.

Look for your heroes, look right next to you, in your family, your church, your neighborhood, your work.  Then when you find them there, find the hidden heroes out there in the public sphere (I have a few even though I criticized them in this post.)

The glass is not just half full.  The glass is overflowing, you just have to know where to look for the bar!

The problem of pain

(Disclaimer: I’m a huge hypocrite, so this is what I would like to do, not what I do.  Long post, slightly ranty.)

The Galbena River Cave in Apuseni mountainsDo you guys like music?  There is a great band out there for a bit called “Mumford and Sons”, and they have a great song called “The Cave”.  We’ll get to this later.

Last night and this morning I’ve been pondering sickness, suffering, and death.  Pain.  Why we have it, what it means.  It started with a bit of new legislation in New Zealand, actually, that wants to allow assisted suicide for the terminally ill and seriously injured.  Then I got a bit of news about suffering, and how it should end.  I’m also reminded of my first ALS clinic, where the psychiatrist was quite concerned I would take my own life, and was adamant that I have no guns in the house.

So let us get down to tacks of brass. Continue reading “The problem of pain”

Breathe in, breathe out

The two biggest factors in ALS ratings, apparently, are the ALSFR scale, and lung capacity.  So every visit to anywhere I fill out a 1-5 scale on if I can swallow, eat, hold a fork, get dressed, turn over in bed and move the sheets, etc.  Mundane stuff really, that you don’t think about until it’s hard to pull the covers up, or hard to button.  Or if you start to fatigue just talking, like me.  I joked that a half hour conversation could have taken 10 minutes if I could speak normally!!  (It’s really ok.  I could probably get super inebriated and no one could tell the difference!)

So this test, in the picture, makes me panic a bit every time.  Lung capacity.  And… uhm… the test “blow hole” for lack of a better word is so wide that all the air comes out at once and you feel like you are failing.  It doesn’t help they are saying in the background “push push push push push good!”  (Delivery room flashbacks!). It also doesn’t help that Mel is the room taking pictures and making me laugh while doing it!!  But seriously, do you see that picture???

Which leads to the irreverent attitude I have in the dr. office.  I don’t know about you, but life is hysterical.  The fact that I have this disease doesn’t make it any less hilarious all the things we go through!  Mel made me walk all the way across the hospital to reach a clean bathroom.  I couldn’t stop laughing the whole way!  The OT wants to give me a carbon fiber foot brace for foot drop… I get my pirate peg leg!  There are so many positives that I can’t stay serious for too long, I’ll go insane!  (And, I am active.)

All this to say, with all the news going on in my life, all the blessings, kind words, prayers, monetary help, and people I’ve never met just willing to help, I feel more at peace than I have in the past.  This clinic visit was harder than before, but I left with a real view of the road ahead.  And I breathed easier.  The road is hard, the struggle is real, but with God, the saints and angels, my family, my companions, we’ll make it.  Breathe out.  God’s in charge no matter the outcome.  So smile, laugh at yourself, because life is hilarious!