With much fanfare, travelling, and a rant or 6, the first step of the Nurown trial is complete. Lumbar puncture, infusion of stem cell, and 24hr monitoring period. Then the return home! Continue reading “1st Infusion Complete (pt 1 of 3)”
We went up to Hopkins for my clinical eval today. I like going up there, seeing all the people who have dedicated their professions to trying to help people like me, but sometimes it can be burdensome. Interesting, but burdensome. I have a feeling I’m not like other ALS patients… Continue reading “ALS Clinic – Subtlety lost in the rain”
The payoff for this one is at the end.
Today I will talk about my personal battle with the forces of socialism. Buckle up! Continue reading ““Cut me, Mick.””
I often say that phrase, when thinking about plane crashes or drug side effects or car accidents. It is a very selfish phrase because it assumes only about me – I’m already dying, what could be worse?
Well, I found out. Continue reading “What’s the worst that can happen?”
Yesterday we went to the Franciscan Monastery in DC for the annual Lourdes pilgrimage reunion. It was so awesome to fellow malades from the trip and the local Knights and Dames of Malta that could make it! Continue reading “Lourdes Reunion”
The blessing of ALS is being able to see true characters of people, their goodness and generosity. So I will share with you all what I got to experience today. Continue reading “Amazing people, humbling moments”