I had my two week follow up to the lumbar injection up at Umass this past Thursday. This was a strange feeling,
as Mel had major surgery on Friday before and couldn’t really do much. So Joey volunteered to be my escort on this trip, with plans of beer, jokes and Volturno’s pizza. Continue reading “Who Farts on an Airplane, redux”
Dear Invacare, Staxi, Sunrise, Permobil, Quickie, Pride, Quantum, Hovaround, PDG, Drive, Karman, and others who make manual and powered wheelchairs:
Your products suck. Continue reading “Another wheelchair rant (part 3 of 3)”
We went up to Hopkins for my clinical eval today. I like going up there, seeing all the people who have dedicated their professions to trying to help people like me, but sometimes it can be burdensome. Interesting, but burdensome. I have a feeling I’m not like other ALS patients… Continue reading “ALS Clinic – Subtlety lost in the rain”
The payoff for this one is at the end. 
Today I will talk about my personal battle with the forces of socialism. Buckle up! Continue reading ““Cut me, Mick.””
Last post I talked about Convenience Car Care, and how awesome they and Timmy Tyrrell are. Well, I want to expand on that a little bit and talk about car guys, and the automobile mentality. Because, yeah! Continue reading “Car guys are awesome”
The blessing of ALS is being able to see true characters of people, their goodness and generosity. So I will share with you all what I got to experience today. Continue reading “Amazing people, humbling moments”
Well, due to the three comments on the post, I’m going to share with you the list of companies I have reached out to for the EV and their responses, and who I’d like to reach out to. Always open to suggestions! (This is not for everyone who has helped us, I could thank them for weeks!!) Continue reading “The list so far”
