Today I was reminded of a man who doesn’t care about your rules and norms, but what he believes is right. So I’ll share his story and what we can learn.
There is a movement on Facebook right now to raise awareness of ALS, using intimate and vulnerable photos of patients and caregivers to get your attention.
As the hashtag implies, the pictures are Naked. So here we go… Continue reading “#Alsnakedtruth”
I’ve been consuming a lot of information lately, since I now live with reduced ability to get around. And all that I am consuming has also brought me to this point, this horrible, visceral point… Continue reading “Stab in the gut…”
Hello, Reader-land! I hope you are well. I am eager to share this latest post as the next EV post will be the reveal! I want to take you on my journey of this process, and share with you the wonderful people who built and supported this! Continue reading “EV updates!”
First, thank you all for your kind words of affirmation. I am being honest in these posts, which I guarantee will be used as defense of my Cause for Sainthood, and why I’m NOT a saint, but I’ll be fair and say it is cathartic to share with others.
But so much is going on. Such opinion. So talking! I don’t know what to start with! 
Maybe a big positive first, to share my joy with you? Yeah I’ll do that!
Joe's ChronicALS 