Last week I went to DRCE and they modified my Civic so that I could drive with more confidence. Here is the story.
I had my two week follow up to the lumbar injection up at Umass this past Thursday. This was a strange feeling,
as Mel had major surgery on Friday before and couldn’t really do much. So Joey volunteered to be my escort on this trip, with plans of beer, jokes and Volturno’s pizza. Continue reading “Who Farts on an Airplane, redux”
Dear Invacare, Staxi, Sunrise, Permobil, Quickie, Pride, Quantum, Hovaround, PDG, Drive, Karman, and others who make manual and powered wheelchairs:
Your products suck. Continue reading “Another wheelchair rant (part 3 of 3)”
“Those of us with ALS are not ready to lose so much so quickly.” – Martin D’Amore, MD
Fair warning, this is hard for me to write so if you aren’t ready for it, postpone reading.
With much fanfare, travelling, and a rant or 6, the first step of the Nurown trial is complete. Lumbar puncture, infusion of stem cell, and 24hr monitoring period. Then the return home! Continue reading “1st Infusion Complete (pt 1 of 3)”
We went up to Hopkins for my clinical eval today. I like going up there, seeing all the people who have dedicated their professions to trying to help people like me, but sometimes it can be burdensome. Interesting, but burdensome. I have a feeling I’m not like other ALS patients… Continue reading “ALS Clinic – Subtlety lost in the rain”