Today’s a big day

It’s a big day because today they remove the PICC line.

Remove-a-PICC-Line-Step-9They had inserted the PICC because Radicava is intravenously administered and is so regular that doing IVs every two weeks would lead to massive scar tissue and other complications, plus I hate needles.  So, therefore, they need a semi-permanent option.  Why not a port?  Well… to be honest, they aren’t sure how long we are going to live and be eligible for Radicava.  A PICC is non-surgical, really, and non-permanent.

I know that’s cutthroat, but it’s a terminal illness.  you have to think about these things.  If you don’t, you’re in denial, which isn’t’ just a river in Egypt.

I haven’t’ been using the PICC because i can’t take Radicava while in the NurOwn trial, and since I’m officially part of that, i won’t be using the PICC for the near future.

So they’ll take it out and I’m so excited!  It means that i won’t have to bother Mel with weekly dressing changes.  I won’t have to wear a rubber sleeve to shower!  I might be able to go into the POOL!!!!!  Small things, i know.

I’ll let you know if i pass out or something.  always willing to share a humiliating story!!

 

5 thoughts on “Today’s a big day”

  1. Your post made me think of this quote…“Hooray! Today’s the day! The sun is shining, the tank is clean, and we are getting out of– *gasp* the tank is clean. THE TANK IS CLEAN!!” —Finding Nemo

    Liked by 1 person

  2. HI Joe and Mel, Just love reading your upbeat, positive blogs! I so hope that the creative and original electric vehicle works out. What freedom in addition to removing the PICC line. I had to have a port so I know what you are saying.
    Know I think about you and your beautiful family every day and your intentions are in my daily prayers at Mass

    Like

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