It’s a big day because today they remove the PICC line.
They had inserted the PICC because Radicava is intravenously administered and is so regular that doing IVs every two weeks would lead to massive scar tissue and other complications, plus I hate needles. So, therefore, they need a semi-permanent option. Why not a port? Well… to be honest, they aren’t sure how long we are going to live and be eligible for Radicava. A PICC is non-surgical, really, and non-permanent.
I know that’s cutthroat, but it’s a terminal illness. you have to think about these things. If you don’t, you’re in denial, which isn’t’ just a river in Egypt.
I haven’t’ been using the PICC because i can’t take Radicava while in the NurOwn trial, and since I’m officially part of that, i won’t be using the PICC for the near future.
So they’ll take it out and I’m so excited! It means that i won’t have to bother Mel with weekly dressing changes. I won’t have to wear a rubber sleeve to shower! I might be able to go into the POOL!!!!! Small things, i know.
I’ll let you know if i pass out or something. always willing to share a humiliating story!!