It’s a big day because today they remove the PICC line.
They had inserted the PICC because Radicava is intravenously administered and is so regular that doing IVs every two weeks would lead to massive scar tissue and other complications, plus I hate needles. So, therefore, they need a semi-permanent option. Why not a port? Well… to be honest, they aren’t sure how long we are going to live and be eligible for Radicava. A PICC is non-surgical, really, and non-permanent.
I know that’s cutthroat, but it’s a terminal illness. you have to think about these things. If you don’t, you’re in denial, which isn’t’ just a river in Egypt.
I haven’t’ been using the PICC because i can’t take Radicava while in the NurOwn trial, and since I’m officially part of that, i won’t be using the PICC for the near future.
So they’ll take it out and I’m so excited! It means that i won’t have to bother Mel with weekly dressing changes. I won’t have to wear a rubber sleeve to shower! I might be able to go into the POOL!!!!! Small things, i know.
I’ll let you know if i pass out or something. always willing to share a humiliating story!!
Joe's ChronicALS 
Your post made me think of this quote…“Hooray! Today’s the day! The sun is shining, the tank is clean, and we are getting out of– *gasp* the tank is clean. THE TANK IS CLEAN!!” —Finding Nemo
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Following Mel’s lead and quoting: O frabjous day! Callooh! Callay!
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HI Joe and Mel, Just love reading your upbeat, positive blogs! I so hope that the creative and original electric vehicle works out. What freedom in addition to removing the PICC line. I had to have a port so I know what you are saying.
Know I think about you and your beautiful family every day and your intentions are in my daily prayers at Mass
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Thank you, Susan! So good to hear from you, and we are praying for you too!
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I love the quotes. Congrats on the picc removal. hope to see you in the pool soon
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