How’ve you been?

IMG_3288Recently someone remarked that my blog has gone on to religious topics, and how was I doing?  And I said to myself, “Self, they are right, I’ve done a really bad job documenting this time in between!”  So thank you for keeping me in line, and here’s what’s been going on!

As well a special thanks to everyone who has been helping us, family and in-laws, parents and friends.  I’d name you all but I don’t want to leave anyone out.

Continue reading “How’ve you been?”

The Journey Begins

This is a very serious, very sober, take on ALS and all it’s challenges and problems.  I feel that no one out there truly categorizes ALS in their blogs….

Just kidding.  I can’t even type that with a straight face!  No, this won’t be serious, this will be a highly irreverent, stereotype busting, REAL look at life after the ALS diagnosis.  Because when I went into that office, I was living a regular life.  When I left, I was already a marked man and treated as symptom and not a person.  I’m here to tell you there is a lot of time that happens after the diagnosis.

And I’m not dead yet!

Thanks for joining me!

I like the sound of “Lou Gehrig’s Disease”. It has a strong, masculine, athletic ring to it.
— Venerable Father Al Schwartz