This past Sunday, we went to Holy Name parish in DC for mass, and a reception in honor of Fr Al’s birthday.
This post is twofold. Continue reading “Fr. Al Schwartz”
This past Sunday, we went to Holy Name parish in DC for mass, and a reception in honor of Fr Al’s birthday.
This post is twofold. Continue reading “Fr. Al Schwartz”
Recently someone remarked that my blog has gone on to religious topics, and how was I doing? And I said to myself, “Self, they are right, I’ve done a really bad job documenting this time in between!” So thank you for keeping me in line, and here’s what’s been going on!
As well a special thanks to everyone who has been helping us, family and in-laws, parents and friends. I’d name you all but I don’t want to leave anyone out.
This past Thursday, I had to go back to Boston for my 4 week follow up after the transfusion. Mel was still incapacitated so once again, my brother-in-law went with me. Except, it was his birthday!!! Continue reading “Wow, what a surprise!”
“Those of us with ALS are not ready to lose so much so quickly.” – Martin D’Amore, MD
Fair warning, this is hard for me to write so if you aren’t ready for it, postpone reading.
This is a very serious, very sober, take on ALS and all it’s challenges and problems. I feel that no one out there truly categorizes ALS in their blogs….
Just kidding. I can’t even type that with a straight face! No, this won’t be serious, this will be a highly irreverent, stereotype busting, REAL look at life after the ALS diagnosis. Because when I went into that office, I was living a regular life. When I left, I was already a marked man and treated as symptom and not a person. I’m here to tell you there is a lot of time that happens after the diagnosis.
And I’m not dead yet!
Thanks for joining me!
I like the sound of “Lou Gehrig’s Disease”. It has a strong, masculine, athletic ring to it.
— Venerable Father Al Schwartz