Dear Invacare, Staxi, Sunrise, Permobil, Quickie, Pride, Quantum, Hovaround, PDG, Drive, Karman, and others who make manual and powered wheelchairs:
Your products suck. Continue reading “Another wheelchair rant (part 3 of 3)”
Author: Joe
I have ALS and big ideas, oftentimes beyond my grasp. 37-year-old father of four, I love God and try to keep my eyes on the goal!
A glimpse of the Garden (part 2 of 3)
“Those of us with ALS are not ready to lose so much so quickly.” – Martin D’Amore, MD
Fair warning, this is hard for me to write so if you aren’t ready for it, postpone reading.
1st Infusion Complete (pt 1 of 3)
With much fanfare, travelling, and a rant or 6, the first step of the Nurown trial is complete. 
Lumbar puncture, infusion of stem cell, and 24hr monitoring period. Then the return home! Continue reading “1st Infusion Complete (pt 1 of 3)”
ALS Clinic – Subtlety lost in the rain
We went up to Hopkins for my clinical eval today. I like going up there, seeing all the people who have dedicated their professions to trying to help people like me, but sometimes it can be burdensome. Interesting, but burdensome. I have a feeling I’m not like other ALS patients… Continue reading “ALS Clinic – Subtlety lost in the rain”
“Cut me, Mick.”
The payoff for this one is at the end. 
Today I will talk about my personal battle with the forces of socialism. Buckle up! Continue reading ““Cut me, Mick.””
Joe's ChronicALS 