There is a movement on Facebook right now to raise awareness of ALS, using intimate and vulnerable photos of patients and caregivers to get your attention.
As the hashtag implies, the pictures are Naked. So here we go… Continue reading “#Alsnakedtruth”
Hello, Reader-land! I hope you are well. I am eager to share this latest post as the next EV post will be the reveal! I want to take you on my journey of this process, and share with you the wonderful people who built and supported this! Continue reading “EV updates!”
Recently someone remarked that my blog has gone on to religious topics, and how was I doing? And I said to myself, “Self, they are right, I’ve done a really bad job documenting this time in between!” So thank you for keeping me in line, and here’s what’s been going on!
As well a special thanks to everyone who has been helping us, family and in-laws, parents and friends. I’d name you all but I don’t want to leave anyone out.
I had my two week follow up to the lumbar injection up at Umass this past Thursday. This was a strange feeling,
as Mel had major surgery on Friday before and couldn’t really do much. So Joey volunteered to be my escort on this trip, with plans of beer, jokes and Volturno’s pizza. Continue reading “Who Farts on an Airplane, redux”
Dear Invacare, Staxi, Sunrise, Permobil, Quickie, Pride, Quantum, Hovaround, PDG, Drive, Karman, and others who make manual and powered wheelchairs:
Your products suck. Continue reading “Another wheelchair rant (part 3 of 3)”
Joe's ChronicALS 